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We are three adults living in a polyamorous triad family. The content here is intended for an adult audience. If you are not an adult, please leave now.

2/17/2011

Nesidioblastosis

That is the latest medical term we are learning about in our household. 

It is the diagnostic label for a syndrome that some people develop following Rouen Y gastric bypass surgery.  The pancreas goes into overdrive, releasing way more insulin than is required, and the person suffers from dizziness, lightheadedness, disorientation, irritability, loss of consciousness, nausea, and a whole raft of other unpleasant and dangerous symptoms. 

On the orders of His endocrinologist, we have purchased a supply of glucose tablets to have on hand at all times, and a glucogen injection kit in case He loses consciousness.  Today, He and T are at the local Children's hospital, having an extensive battery of tests run to determine whether this is, in fact the diagnosis... 

I am at school, trying to teach, trying to focus...  Just one more thing I guess.  Seems like too much, but then here we are, so I guess its not.

swan

3 comments:

  1. Dear swan and family,

    Sorry to read of this newest challenge. I sincerely hope it turns out for the best. We'll keep sending good thoughts and energy your way.
    Best to all,
    Mystress

    ReplyDelete
  2. Impish12:31 PM

    Oh, dear. Hold on tight, sending strength your way as best I can. It IS too much, but you can all do what you must until it's under control. You have the endurance even if you feel you do not. Hold on.

    ReplyDelete
  3. Well. The testing seemed a bit inconclusive although we won't have final results until His follow up appointment on March 9. He did not have a hypoglycemic "event" as a result of the testing protocol -- good news; bad news. They were clear with Him that it doesn't mean He doesn't have this condition -- only that He did not have an event on this particular occasion. He has been enrolled as part of a six year long study of this disorder, and that will ensure that He will be under the care of an endocrine specialist who is reputed to be one of the best in the field for nesidioblastosis.

    So. Not much news, but at least we feel like we are being proactive about this potential health challenge.

    swan

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